Yet Another Test

Taylor had another EEG today. We're quite anxious to find out the results of it as we've been a bit concerned that we're seeing seizures, but it's hard to know because what she's doing is quite different from her initial seizures. We see the Neurologist in a few weeks and we'll fnd out then. She's such a trooper through all of these tests, and constantly amazes me with how well she takes it all. 20'ish wires stuck all over her head, then it gets wrapped up like a mummy and she needs to sleep for it, I gave her a bottle and off she went, just like she was asked. That's my girl :-)

We also had a consult with Dr. Wong in Surgery Clinic today. That was a bit of a gong show. Waited in the waiting room there for about 3 hours before we were seen. All for nothing more than a consult. Good grief. We met Dr. Wong, he'll be doing a muscle biopsy on her sometime soon. The Neurologist wanted us to have this done when we were in the hospital back in March, but we managed to put it off a while. It's just day surgery, but we still weren't too keen on poor Taylor getting cut. They still don't know what the cause is for the onset of the Infantile Spasms, so they want to do a muscle biopsy to look for Mitochondrial Disease. Hopefully it will just rule that possibility out, because it's not a good news story.