We saw Dr. Sarnat today and addressed a concern that we suspect Taylor has been having seizures for quite some time, but we didn't realize it.
At therapy recently, Taylor's physiotherapist noticed one of them and said she thought that it looked like a seizure. She has these startle type jumps as if she heard a loud noise across the room, but she has them constantly even in complete silence. When she said that to us I got very nervous, because she has so many of these, constantly all day long, and we've been watching her do that for months. Gulp. Never for a second did we think those could be seizures.
So Dr. Sarnat is sending Taylor for an EEG...TOMORROW...now that's impressive. What's more is later this week she's also being presented to a visiting doctor from Paris. His name is Dr. Olivier Dulac, a leading Pediatric Neurologist and world expert in Infantile Spasms. What an incredible opportunity to get the input of another seasoned Neurologist.
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