Taylor had a really good night last night, slept well and no tears. We had a nice family day today, just the four of us. Francis and Marissa came down just after lunch. Hung out in Taylor's room together for a while, then I took Marissa out for some Mommy and Marissa time, and Daddy stayed at the hospital for Daddy and Taylor time. When Marissa and I got back, Francis and Taylor were lying down together cuddling on my bed, very sweet. Then Marissa entertained us by playing school. Francis was the teacher, she was pretending to be outside for recess, and told him to ring the bell for snack time. Then it was circle time and she told him how to sing the bunny song. Then she made him do story time and she sat on the floor listening intently. Quite amusing she was!
Taylor got a bit worked up earlier tonight, and hasn't pooped since Thursday morning after her enema. I asked for another one because I don't want her having another bad night if that's what was bothering her. So hopefully now that she's emptied out she'll settle and sleep well. She ate her two meals and bottles well again today and had the additional 3 tube feeds.
Not much to report on, we've got an EEG tomorrow, and the Swallow Study on Tuesday. Hopefully both will go well and they can take the feeding tube out and let us go home. Fingers crossed! It's been 10 days now and we're getting B.O.R.E.D. here!
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