Decisions

Mom & Bryan have the girls for the weekend. Two sleep-ins, a quiet house, time to do whatever we want and just be the two of us. It's a beautiful break. Thank you both so much.

It also gives us time to think. Dr. Bello put in a referral to GI for us to have a g-tube consult. But the more we think about it, we have made the decision that it's what we need to do. We can't keep subjecting Taylor to the trauma she goes through every week when we change her tube.

This NG tube has changed her. I see fear in her face. She has become so ultra sensitive of anything to do with her face, not just the tube changes. Washing her face, brushing her teeth, putting chapstick on, wiping her nose, even trying to kiss her on the cheek or wipe her tears nearly puts her over the edge. I hate what this NG tube has taken from her. And I so desperately hope that getting the G-tube brings my little girl back. And takes her fear away.

It's funny what a matter of months will do. Back in October when the NG tube went in I was devastated. The thought of needing a G-tube wasn't even an option in my mind, there was just no way. But now, after 3 months of no progress being made with oral feeds, and seeing the trauma Taylor goes through and the fear in her eyes, we are completely at peace with this decision.

The G-tube it is, and it can't come soon enough.