Last Friday Francis went to the PUF info session at Pace. With our last few questions answered, we have decided that when Taylor transitions to PUF programming in September, she will do so at Pace. We already know the centre, like what they have to offer, and we think it's the best program for her. Feeling really good about our choice and glad that this piece is now done. Something to check off the 'to do' list, which always seems to be miles long!
Taylor's been working so hard with Shar on her home program. Here's a few pics to show off her efforts and the wee little things that make us cheer, "yay for Taylor"...
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| You're supposed to let us put FOOD in your mouth Taylor! |
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| Deep in concentration focusing on the triangle |
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| Nice holding your head Taylor! |
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| Tray play with her piano to encourage reaching and touching |
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| Mesmerized by her jingle bells |
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| Standing so tall...she fell asleep like this believe it or not! |
Went to see the Pediatrician today. Haven't been yet for her 2 year check up, but mainly went to discuss the urgency of this g-tube surgery. Now that we've made the decision to go ahead, it can't happen fast enough. Sitting around waiting for GI to call us with an appointment is not time well spent. Can't this be fast tracked? She needs this. She can't keep going through the traumatic NG changes. Mommy can't either. Dr. Palmer was very supportive. He's going to put in a referral to Surgery Clinic, but he does feel that it's still important for GI to evaluate whether or not there is a need for a fundoplication. This is where the upper curve of the stomach (the fundus) is wrapped around the esophagus and sewn into place so that the lower portion of the esophagus passes through a small tunnel of stomach muscle. This surgery strengthens the valve between the esophagus and the stomach (lower esophageal sphincter), which stops acid from backing up into the esophagus as easily. If a fundoplication is needed, it should be done at the same time as the g-tube surgery. So this is why the GI evaluation is a critical piece. Taylor doesn't have alot of reflux, but apparently having a g-tube can make reflux worse, and the pediatrician relayed a concern that with developmentally delayed children, there is risk of refluxing in their sleep and aspirating that reflux, and that is very dangerous. Sigh.
Wish it wasn't all so complicated.
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