Thursday, September 17, 2009

Another Busy Day


Two appointments at Children's today. First we met with Voon, our Occupational Therapist (OT) for a feeding appointment to introduce Taylor to some texture, she's still on purees. It went fairly well but it will be a slow transition while Taylor learns how to move food over with her tongue and chew it. Voon suggests stimulating her mouth with the toothbrush before a meal, then giving her a few spoonfuls of more chunky food. Once her gag reflex gets triggered, then it's time to stop and finish the meal with her usual pureed food. Then we just gradually increase the amount of chunky food as she can manage it until the purees can be eliminated altogether. As with everything else, this will just take time.

Our second appointment was with Dr. Clegg, the Cardiologist. Taylor had another 24 hour holter monitor on last week and the results were great, it showed no early extra beats. There's a small possibility that it's not showing the arrythmia because the Atenolol (beta blocker meds) is just doing its job. But she is fairly confident that Taylor has outgrown the arrythmia. When her type of arrythmia occurs as a newborn, the vast majority outgrow it within a year. So for the next week Dr. Clegg wants us to drop the morning dose of Atenolol, and then stop it altogether. Yay, we're going off a med! She wants us to do another 24 hour holter monitor a few weeks after Taylor's been off the meds just to confirm that the arrythmia is gone. I'm very hopeful!

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